Significados atribuidos por el paciente trasplantado al órgano recibido, al donante, a la vida y a la muerte

  • Simone Fuica Universidad del Rosario
  • Ximena Palacios-Espinosa Programa de Psicología Universidad del Rosario (Colombia)
Palabras clave: Trasplante de órganos, receptores de trasplantes, donantes de tejidos, imagen corporal, narrativas personales,

Resumen

Objetivo. El trasplante de órganos o tejidos es una opción terapéutica viable para el tratamiento de enfermedades crónicas en estadios terminales y sin compromiso vital. Varias investigaciones y planes de intervención han girado en torno a la dimensión biológica del trasplante y a la promoción de la donación. No obstante, el interés por la experiencia psicosocial y la calidad de vida de los receptores en este proceso, ha aumentado durante la última década. De allí que el objetivo del presente trabajo sea comprender el significado atribuido por el paciente trasplantado al órgano, al donante, a la vida y a la muerte. Método. Se realizó una revisión sistemática de la literatura en la que se consultaron 51 artículos obtenidos en seis bases de datos especializadas (Ebsco Host: Academic Search, Ebsco Host Psychology & Behavioral Sciences Collection, Proquest, Pubmed, Science Direct & Taylor and Francis Online). Resultados. Aunque el interés en el tema de la experiencia de los receptores durante el proceso de trasplante ha venido en aumento, la investigación de los aspectos psicológicos implicados en el trasplante de órganos y tejidos no es concluyente. Conclusión. Se requiere mayor investigación que proporcione elementos para predecir y explicar la conducta de quienes son trasplantados.

Biografía del autor/a

Simone Fuica, Universidad del Rosario

Simone Fuica

Universidad del Rosario

Psicóloga (U. del Rosario-Colombia)

simo92.fp@gmail.com

Autor de correspondencia

 

Ximena Palacios-Espinosa, Programa de Psicología Universidad del Rosario (Colombia)

Programa de Psicología Universidad del Rosario (Colombia)

Psicóloga Magister en Psicología Clínica y de la Salud (U. de Granada-España)Doctora en Psicología Social (U. de Bolonia – Italia)

Citas

Con asterisco las referencias que conformaron la revisión sistemática.

*Anand-Kumar, V., Kung, M., Painter, L. y Broadbent, E. (2014). Impact of Organ Transplantation in Heart, Lung and Liver Recipients: Assessment of Positive Life Changes. Psychology & Health, 29(6), 687-697. doi: 10.1080/08870446.2014.882922

*Arno, A., Barret, J. P., Harrison, R. A. y Jeschke, M. G. (2012). Face Allotransplantation and Burns: A Review. Journal Burn Care & Research, 33(5), 561-576. doi: 10.1097/BCR.0b013e318247eb06

*Baranyi, A., Krauseneck, T. y Rothenhausler, H. B. (2013). Overall Mental Distress and Health Related Quality of Life After Solid-Organ Transplantation: Results from a Retrospective Follow Up Study. Health and Quality of Life Outcomes, 11(1), 1-11. doi: 10.1186/1477-7525-11-15

*Bean, K. B. y Wagner, K. (2006). Self-Transcendence, Illness Distress, and Quality of Life among Liver Transplant Recipients. The Journal of Theory Construction & Testing, 10(2), 47-53. Recuperado de http://connection.ebscohost.com/c/articles/23465579/selftranscendence-illness-distress-quality-life-among-liver-transplant-recipients

*Brill, S. E., Clarke, A., Veale, D. M. y Butler, P. E. M. (2006). Psychological Management and Body Image Issues in Facial Transplantation. Body Image, 3(1), 1-15. doi: 10.1016/j.bodyim.2005.12.002

*Burra, P., De Bona, M., Germani, G., Canova, D., Masier, A., Tomat, S. y Senzolo, M. (2007). The Concept of Quality of Life in Organ Transplantation. Transplantation Proceedings, 39(7), 2285-2287. doi: 10.1016/j.transproceed.2007.06.013

*Coffman, K. L. y Siemionow, M. Z. (2013). Face Transplantation: Psychological Outcomes at Three-Year Follow-Up. Psychosomatics, 54(4), 372-378. doi: 10.1016/j.psym.2012.10.009

*Colarusso, C. (2006). Giving Back to Donor Families: The "Thank You Letter" Package Insert Project. Progress in Transplantation, 16(1), 82-86. Recuperado de http://www.ncbi.nlm.nih.gov/pubmed/16676679

*Crowley-Matoka, M. (2005). Desperately Seeking ‘‘Normal’’: the Promise and Perils of Living with Kidney Transplantation. Social Science & Medicine, 61(4), 821-831. doi: 10.1016/j.socscimed.2004.08.043

*Crowley-Matoka, M. y & Lock, M. (2006). Organ Transplantation in a Globalized World. Morality, 11(2), 166-181. doi: 10.1080/13576270600615310

*De Bona, M., Ponton, P., Ermani, M., Iemmolo, R. M., Feltrin, A., Boccagni, P., … Gerunda, G. (2000). The Impact of Liver Disease and Medical Complications on Quality of Life and Psychological Distress Before and After Liver Transplantation. Journal of Hepatology, 33(4), 609-615. doi: 10.1016/S0168-8278(00)80012-4

*Decker, O., Lehmann, A., Fangmann, J., Brosig, B. y Winter, M. (2008). Phases of Organ Integration and Conflict in a Transplant Recipient: a Longitudinal Study Using a Diary. The American Journal of Psychoanalysis, 68(3), 237-256. doi: 10.1057/ajp.2008.15

*Dew, M. A., DiMartini, A. F., DeVito Dabbs, A., Fox, K. R., Myaskovsky, L., Posluszny, D. M., … Swtzer, G. E. (2012). Onset and Risk Factors for Anxiety and Depression during the First Two Years after Lung Transplantation. General Hospital Psychiatry, 34(2), 127–138. doi: 10.1016/j.genhosppsych.2011.11.009

*Edgar, A. (2009). The Challenge of Transplants to an Intersubjectively Established Sense of Personal Identity. Health Care Anal, 17(2), 123-133. doi: 10.1007/s10728-009-0119-y

*Evangelista, L. S., Doering, L. y Dracup, K. (2003). Meaning and Life Purpose: the Perspective of Post-Trasplant Women. Heart & Lung, 32(4), 250-257. doi: 10.1016/S0147-9563(03)00042-6

*Fox, R. C. y Swazey, J. P. (2002). The Courage to Fail: A Social View of Organ Transplants and Dialysis. New Brunswick, NJ: Transaction Publishers.

*Gill, P. (2012). Stressors and Coping Mechanisms in Live-Related Renal Transplantation. Journal of Clinical Nursing, 21(11), 1622-1631. doi: 10.1111/j.1365-2702.2012.04085.x

*Goetzmann, L. (2004). Is It Me, or Isn’t It? - Transplanted Organs and Their Donors as Transitional Objects. The American Journal of Psychoanalysis, 64(3), 279-289. doi: 10.1023/B:TAJP.0000041262.36839.fd

*Goetzmann, L., Irani, S., Moser, K. S., Schwegler, K., Stamm, M., Spindle, A., … Buddeberg, C. (2009). Psychological Processing of Transplantation in Lung Recipients: A Quantitative Study of Organ Integration and the Relationship to the Donor. British Journal of Health Psychology, 14(4), 667-680. doi: 10.1348/135910708X399447

*Hoodin, F. y Weber, S. (2003). A Systematic Review of Psychosocial Factors Affecting Survival after Bone Marrow Transplantation. Psychosomatics, 44(3), 181–195. doi: 10.1176/appi.psy.44.3.181

*Kierans, C. (2005). Narrating Kidney Disease: the Significance of Sensation and Time in the Emplotment of Patient Experience. Culture, Medicine and Psychiatry, 29(3), 341-359. doi: 10.1007/s11013-005-9171-8

*Kierans, C. (2011). Anthropology, Organ Transplantation and the Immune System: Resituating Commodity and Gift Exchange. Social Science & Medicine, 73(10), 1469–1476. doi: 10.1016/j.socscimed.2011.09.008

*Lamanna, M. A. (1997). Giving and Getting: Altruism and Exchange in Transplantation. Journal of Medical Humanities, 18(3), 169-192. doi: 10.1023/A:1025637702288

*Lauritzen, P., Mcclure, M., Smith, M. L. y Trew, A. (2001). The Gift of Life and the Common Good. The Need for a Communal Approach to Organ Procurement. Hastings Center Report, 31(1), 29-35. doi: 10.2307/3528731

*Martín-Rodríguez, A., Fernández-Jiménez, E., Pérez-San-Gregorio, M. A., Pérez-Bernal, J. y Gómez-Bravo, M. A. (2013). Longitudinal Study of Liver Transplant Recipients’ Quality of Life as a Function of Their Perception of General Health: At Waiting List and at 3, 6, and 12 Months Post Transplantation. Transplantation Proceedings, 45(10), 3653-3655. doi: 10.1016/j.transproceed.2013.10.026

*Muehrer, R. J. y Becker, B. N. (2005). Life after Transplantation: New Transitions in Quality of Life and Psychological Distress. Seminars in Dialysis, 18(2), 124-131. doi: 10.1111/j.1525-139X.2005.18214.x

*Neukom, M., Corti, V., Boothe, B., Boehler, A. y Goetzmann, L. (2012). Fantasized Recipient-Donor Relationships Following Lung Transplantations: A Qualitative Case Analysis Based on Patient Narratives. International Journal of Psychoanalysis, 93, 117-137. doi: 10.1111/j.1745-8315.2011.00496.x

*Pascazio, L., Nardone, I. B., Clarici, A., Enzmann, G., Grignetti, M., Panzetta, G. O. y Vecchiet, C. (2010). Anxiety, Depression and Emotional Profile in Renal Transplant Recipients and Healthy Subjects: A Comparative Study. Transplantation Proceedings, 42(9), 3586–3590. doi: 10.1016/j.transproceed.2010.08.056

*Pérez, M. A., Martín, A., Gallego, A. y Santamaría, J.L. (2000). Influencia de algunas variables médicas y psicosociales en la recuperación psicológica de los trasplantados. Futuras líneas de intervención psicológica. Revista de Psicopatología y Psicología Clínica, 5(1), 71-87. doi: 10.5944/rppc.vol.5.num.1.2000.3888

*Quintin, J. (2013). Organ Transplantation and Meaning of Life: The Quest for Self Fulfilment. Medicine, Health Care and Philosophy, 16(3), 565-574. doi: 10.1007/s11019-012-9439-z

*Rumsey, N. y Harcourt, D. (2004). Body Image and Disfigurement: Issues and Interventions. Body Image, 1, 83-97. doi: 10.1016/s1740- 1445(03)00005-6

*Sanner, M. A. (2001). Exchanging Spare Parts or Becoming a New Person? People’s Attitudes toward Receiving and Donating Organs. Social Science & Medicine, 52(10), 1491-1499. doi: 10.1016/S0277-9536(00)00258-6

*Sanner, M. A. (2003). Transplant Recipients’ Conceptions of Three Key Phenomena in Transplantation: The Organ Donation, the Organ Donor, and the Organ Transplant. Clinical Transplantation, 17(4), 391-400. doi.org: 10.1034/j.1399- 0012.2003.00065.x

*Scheper-Hughes, N. (2007). The Tyranny of the Gift: Sacrificial Violence in Living Donor Transplant. American Journal of Transplantation, 7(3), 507-511. doi: 10.1111/j.1600-6143.2006.01679.x

*Shanmugarajah, K., Hettiaratchy, S., Clarke, A. y Butler, P. E. (2011). Clinical Outcomes of Facial Transplantation: A Review. International Journal of Surgery, 9, 600-607. doi: 10.1016/j.ijsu.2011.09.005

*Sharp, L. (1995). Organ Transplantation as a Transformative Experience: Anthropological Insights into the Restructuring of the Self. Medical Anthropology Quarterly, 9(3), 357-389. Recuperado de http://www.ncbi.nlm.nih.gov/pubmed/8542439

*Shaw, R., Bell, L. y Webb, R. (2012). New Zealanders’ Perceptions of Gift and Giving Back as Participants of Organ Transfer Procedures. Kōtuitui: New Zealand Journal of Social Sciences Online, 7(1), 26-36. doi: 10.1080/1177083X.2012.670651

*Shimazono, Y. (2008). Repaying and Cherishing the Gift of Life: Gift Exchange and Living-related Kidney Transplantation in the Philippines. Anthropology in Action, 15 (3), 34-46. doi: 10.3167/aia.2008.150304

*Siemionow, M., Gharb, B. B. y Rampazzo, A. (2013). Successes and Lessons Learned after More than a Decade of Upper Extremity and Face Transplantation. Curr Opin Organ Transplant, 18(6), 633-639. doi: 10.1097/MOT.0000000000000021

*Siminoff, L. A. y Chillag, K. (1999). The Fallacy of the "Gift of Life". Hastings Center Report, 29(6), 34-41. doi: 10.2307/3527870

*Soni, C.V., Barker, J. H., Pushpakumar, S. B., Furr, L. A., Cunningham, M., Banis, J. C. y Frank, J. (2010). Psychosocial Considerations in Facial Transplantation. Burns, 36(7), 959-964. doi: 10.1016/j.burns.2010.01.012

*Sothern, M. y Dickinson, J. (2011). Repaying the Gift of Life: Self-Help, Organ Transfer and the Debt of Care. Social & Cultural Geography, 12(8), 889-903. doi: 10.1080/14649365.2011.624192

*Sque, M. y Payne, S. A. (1994). Gift Exchange Theory: a Critique in Relation to Organ Transplantation. Journal of Advanced Nursing, 19(1), 45-51. doi: 10.1111/j.1365-2648.1994.tb01049.x

*Stuber, M. L. (2011). Psychiatric Issues in Pediatric Organ Transplantation. Pediatric Clinics of North America, 58(4), 887-901. doi: 10.1016/j.chc.2010.02.002

*Swindell, J. S. (2007). Facial Allograft Transplantation, Personal Identity and Subjectivity. Journal of Medical Ethics, 33(8), 449-453. doi: 10.1136/jme.2006.017475

*Taşkintuna, N. y Ozcurumez, G. (2011). End-Stage Renal Disease and Psychological Trauma: Shame and Guilt in Hemodialysis Patients, Transplantation Recipient and Donor Candidates, and Controls. Archives of Neuropsychiatry, 48, 249-254. doi: 10.4274/npa.y5846

*Toure, G., Meningaud, J. P., Bertrand, J. C. y Hervé, C. (2006). Facial Transplantation: A Comprehensive Review of the Literature. Journal of Oral and Maxillofacial Surgery, 64 (5), 789-793. doi: 10.1016/j.joms.2006.01.010

*Ullrich, G., Schmidt, S., Scharf, E., Penkert, J., Niedermeyer, J. y Schulz, W. (2010). Lung Transplant Recipients’ Views on the Integration of their New Organs. Disability and Rehabilitation, 32(9), 713-722. doi: 10.3109/09638280903258860

*Vamos, M. (2010). Organ Transplantation and Magical Thinking. Australian and New Zealand Journal of Psychiatry, 44(10), 883-887. doi: 10.3109/00048674.2010.498786

*Whitfield, N. (2013). Who is My Stranger? Origins of the Gift in Wartime London, 1939-45. Journal of the Royal Anthropological Institute, 19(1), 95-117. doi: 10.1111/1467-9655.12018

*Williams, B. J. (2012). Self-Transcendence in Stem Cell Transplantation Recipients: A Phenomenologic Inquiry. Oncology Nursing Forum, 39(1), 41-48. doi: 10.1188/12.ONF.E41-E48

Ashworth, P. D. (2013). The Gift Relationship. Journal of Phenomenological Psychology, 44, 1-36. doi: 10.1163/15691624-12341243

Carosella, E. D. y Pradeu, T. (2006). Transplantation and Identity: a Dangerous Split? The Lancet, 368(9531), 183-184. doi: 10.1016/S0140-6736(06)68938-1

Davydow, D. S., Lease, E. D. y Reyes, J. D. (2015). Posttraumatic Stress Disorder in Organ Transplant Recipients: a Systematic Review. General Hospital Psychiatry, 37, 387-398. doi: 10.1016/j.genhosppsych.2015.05.005

Dubernard, J. M., Petruzzo, P., Lanzetta, M., Parmentier, H., Martin, X., Dawahra, M., … Hakim, N. (2003). Functional Results of the First Human Double-Hand Transplantation. Annals of Surgery, 238(1), 128-136. doi: 10.1097/01.SLA.0000078945.70869.82

Global Observatory on Donation & Transplantation. (2012). Organ Donation and Transplantation Activities: 2012. Recuperado de http://www.transplant-observatory.org/Documents/Data %20Reports/Basic%20slides%202012.pdf

Mahillo, B., Carmona, M., Álvarez, M., Noel, L. y Matesanz, R. (2013). Global Database on Donation and Transplantation: Goals, Methods and Critical Issues. Transplantation Reviews, 27(2), 57-60. doi: 10.1016/j.trre.2013.01.001

Mauss, M. (1990). The Gift: The Form and Reason for Exchange in Archaic Societies. London and New York: Routledge.

Mizraji, R., Álvarez, I., Palacios, R. I., Fajardo, C., Berrios, C., Morales, F., … Luna, E. (2007). Organ Donation in Latin America. Transplantation Proceedings, 39(2), 333-335. doi: 10.1016/j.transproceed.2007.01.017

Reed, P. G. (1991). Toward a Nursing Theory of Self-Transcendence: Deductive Reformulation Using Developmental Theories. Advances in Nursing Science, 13 (4), 64-77. Recuperado de http://www.ncbi.nlm.nih.gov/pubmed/2059006

Sharp, L. (2006). Strange Harvest: Organ Transplants, Denatured Bodies, and the Transformed Self. Berkeley: University of California Press.

Shellmer, D. A., DeVito Dabbs, A., Dew, M. A., Terhorst, L., Noll, R. B., … Kosmach-Park, B. (2013). Adaptive Functioning and Its Correlates after Intestine and Liver Transplantation. Pediatric Transplantation, 17(1), 48-54.

Stein, A., Higgins, R. y Wilde, J. (2008). Kidney Transplants Explained. Londres: Class Publishing.

World Health Organization. (2009). Global Glossary of Terms and Definitions on Donation and Transplantation. Recuperado de http://www.who.int/transplantation/activities/GlobalGlossaryonDonationTransplantation.pdf

Winnicott, D. W. (1953). Transitional Objects and Transitional Phenomena. International Journal of Psychoanalysis, 34, 89-97. doi: 10.1111/b.9780631170488.1995.x

Youngner, S. J. (1996). Some Must Die. En S. J. Youngner, R. C. Fox y L. J. O’Connell (Eds.), Organ Transplantation: Meaning and Realities (pp. 32-55). Wisconsin: University of Wisconsin Press.

Publicado
2016-08-03
Cómo citar
Fuica, S., & Palacios-Espinosa, X. (2016). Significados atribuidos por el paciente trasplantado al órgano recibido, al donante, a la vida y a la muerte. Pensamiento Psicológico, 14(2), 19-32. Recuperado a partir de https://revistas.javerianacali.edu.co/index.php/pensamientopsicologico/article/view/1277
Sección
Artículos de investigación original